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State of the IT Boy

January 18, 2008

As of last night, all the “annual” progress reports from IT Boy’s various therapist have arrived.  I say “annual” because not everyone has been working with him for a full year, but his review is on the anniversary of him starting in Early Intervention, hence “annual”.

In any case, the news is good and the news is less than good.  Good in that therapy is accomplishing some goals.  Less than good in that he still has a long way to go.  They’ve been able to identify his delay as being either 5 months (PT), 3 months (OT) or 4 months (Speech).  So, he’s delayed.  We’ve got that.  Moving on.

Both PT and OT are perfectly happy coming 2 days a week.  I’m fine with that.  PT had mentioned that depending on the delay, she might be able to get a 3rd session on the plan for him.  I was very hesitant about that, because simply put he’s wiped after PT.  Often times we find him nodding off at the end of a session, and he certainly power naps when he’s done.  Plus, fitting in more than he already has is proving to be a challenge.

Speech wants him 3 days a week.  His low tone means that his mouth muscles are weak too (who knew?) and he’s way behind where he should be.  My concerns weren’t necessarily speech related, but more cognitive development.  For instance, he’s still not really pointing.  He’s getting the idea about how things work (a car goes wroooom on the floor, balls are for bouncing) but it’s been slow in coming.

So I shouldn’t have been totally surprised when the speech report comes back suggesting that we add a “special instructor” to the therapy regimen to concentrate on the cognitive development.   This will take Boy up to *9* therapy sessions per week, if we do it, so as you can imagine, I’m a bit apprehensive here.  On the one hand, these have been my bigger concerns, outside of motor skills, so I’m happy to see we can get someone in to concentrate on this stuff.  But at the same time, it’s a lot for Boy to deal with.  He has therapy 2 or even 3 times a day, and it’s wearing him out.  We haven’t found time for any sort of a playgroup for him, which we know would be a good socializing experience.  He does see other kids through Little IT’s massive social circle, but how much can 8 year old girls pawing him and saying, “He’s so cute” really lead to better walking and mobility?  I’d love to do something like “Music Together” with him.  We did that with Little IT and it was so much fun for her.  The groups in MT are all ages from 0-4 years, which is great because you go from learning from the older kids to mentoring the younger ones as you progress in the program.  But when can we fit this in?  2 hours of therapy, 3 hours of naps, and eating don’t allow for a lot of free time within a day.  Weekends are dicey because of Little IT commitments, but I would happily split off from Mr. IT and have each of us do something with separate kids.  I just need a better idea of when more is better becomes more isn’t so good.

Net net, I am pleased that he is progressing.  IT Boy is work, no doubt about it, but it’s the most rewarding job I could possibly imagine.

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4 Comments leave one →
  1. January 18, 2008 10:59 pm

    as parents we have to trust our inner IT and say when we feel it is “too much” and back off. we all do not come to this earth on the same page and need to be able to grow as intended. often therapy helps. but time and the love a parent can give are bar none, the best in my book. by all means, music class or something fun for the 2 of you. you are in the drivers seat and it boy is in the car seat, but not for long. this too shall pass. all too fast.

  2. tinyeye permalink
    January 23, 2008 1:15 pm

    I love reading about your speech adventures with IT Boy!

    Marnee,

    http://www.TinyEYE.com

  3. Carina permalink
    June 25, 2009 10:08 am

    I was just wondering.. if you’re primary concern was cognitive development, how come your OT isn’t stepping in? What are your goals and progress in OT, if you don’t mind me asking. I’m an OT myself (not US-based though) so I just wanted to ask.

  4. July 6, 2009 7:28 am

    Hi Carina – since this post, we have added to our OT’s schedule, and seen great results. Our goals in OT are to build his fine motor skills and to better understand his sensory seeking behavior. We’ve seen huge gains in fine motor skills – he can now use a fork and spoon easily, for instance. In terms of sensory seeking, we’re learning ways to account for his needs here (brushing regimen, sensory gym activities, etc.) so things are going much better 6 months later. Thanks for asking!

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