The One Thing
It’s been one year, give or take a week or so, since the Boy started his therapy regimen to battle hypotonia. This week, he’s had evaluations with his OT and PT to review where he is and where he should be. It’s encouraging, and it’s not. He’s made significant gains in some areas, but you can see others where he’s far from where he should be. He can do so many things that he couldn’t do when he started PT a year ago. For instance, he’s a speedy crawler, so much so that his grandfather nicknamed him “Scooter”. He’s cruising on furniture, and crawling up stairs unassisted. But he’s not standing or walking. Yet.
To put everything into perspective, I sat down the other day and watched the video I took of him when he first started PT. There he was, a floppy and pale little boy being put through things he wasn’t entirely happy with. The PT liked to see how his muscles moved, so he was stripped down to his diaper. I had to bite back tears, seeing now what I didn’t see then, and that was how helpless he looked when he was trying to do things. She used to do little baby sit ups and other activities to get him conscious of his feet, to help him know where his plane of movement was. Sometimes, he was frustrated. Oftentimes he would cry, so much so that we had to stop the session and have the PT comfort him. I must have compartmentalized or channeled my emotions during these sessions because they affect me much more now than they did then.
I do recommend that parents going through this with their kids tape a session every month or so, to give a reference point on how much progress has been made. It’s hard not to be discouraged. I push myself to focus on the achievements, and having to put what needs to be achieved in a positive light. Like, how can we help him get there, not bemoaning the fact that he isn’t there yet. It’s hard, but no one said this was going to be easy.