I’ve blogged a few times about how we have continued to seek a diagnosis for IT Boy, only to wind up with no diagnosis. He’s 2.6 years old, and we know little more about what’s causing his delays than we did when we first started noticing something was up.
Genetic testing turned up nothing. One or [...]
Posts Tagged ‘hypotonia’
7 Apr
Diagnois: No Diagnosis
10 Sep
1 week, 5 days
IT Boy just completed day 5 of school. It’s out of order, but I’m counting it as a week. And a success.
We had a couple of painful moments when the staff didn’t realize that his busing had not started yet, and they put him in line for the bus. Realizing I was upstairs waiting for [...]
13 Aug
School Daze
We’ve finally settled on a plan for IT Boy in terms of a preschool. He’s not going to attend the nursery school that his sister went to in the 2’s, at least not this year. We found a (hopefully) great program nearby that is run through Early Intervention and specializes in kids with language and developmental [...]
23 Jul
Giving up the ghost
This fall, IT Boy turns 2. It’s also the time he’s going to start going to pre-school. We signed him up when he was about 6 months, to get him a place in the wonderful nursery school that his sister went to. It’s the place where I cried when I sent her on her first [...]
17 Jul
Bon Anniversaire
We’re coming up on IT Boy’s second birthday, which means we’re starting to get 6 month progress reports from all of his therapists. The first came yesterday from his PT. Net net, he’s still in delay mode, but making progress, even if it’s not as much as we would like to see. She was going [...]
12 Jul
He’s a walking man
The biggest news in the world of IT Boy is his progress in walking. He’s gone from cruising, and taking steps around the furniture, to walking distances, and now getting up on his own in the middle of the room and taking off. It’s been a joy to see, going from wondering if he would [...]
3 Mar
Kumbaya
Last week, we had IT Boy’s first collaborative meeting. Due to be held monthly, these meetings are intended to bring everyone on “Team Boy” together to talk about his therapies and how best to work together to achieve these goals. It was a bit daunting, this first meeting. We had our service coordinator from Early [...]
11 Jan
Listening to your “inner mommy”
When we first got IT Boy evaluated through EI about a year ago, we didn’t realize what kind of an adventure we had embarked on. As I have mentioned in previous posts, we started with PT, followed 4 months later with OT, and recently have started him working with a speech therapist. But let’s go back a little [...]
4 Jan
The One Thing
It’s been one year, give or take a week or so, since the Boy started his therapy regimen to battle hypotonia. This week, he’s had evaluations with his OT and PT to review where he is and where he should be. It’s encouraging, and it’s not. He’s made significant gains in some areas, but you [...]
13 Dec
Talk to me
IT Boy has started speech therapy. Two months ago, his occupational therapist (OT) recommended that he be evaluated for speech delays. Some of our shared concerns were feeding delays due to his hypotonia/low tone and his not pointing. During his subsequent speech evaluation, I could clearly see that he had many more delays than just those, [...]
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